A butterfly coming out of the cocoon is a beautiful picture of how working our way out of bondage and darkness makes us so very strong.

As parents who have faced the death of our child, we are that butterfly in a cocoon. But many of us don’t even want to come out. And if we do, we often don’t believe coming out is possible, as we feel too weak to keep fighting. But fight, we must do. Some of the strongest, most caring people that I know are pareavors (bereaved parents) who have fought their way out of their cocoon of bondage and darkness.

They are also some of the most beautiful and loving souls I have ever met. Many of them have a deep passion for an unexpected purpose in life to help others. My friends, Dave and Dee, organize runs to bring awareness to heart failure and donate the proceeds to various community organizations. Anne goes into schools to talk about bullying, after her daughter died by suicide in a school bathroom. Kelly started professional training for medical staff on how to help parents in the hospital with infant loss at birth. The list could go on and on, including my becoming an author to help other grieving parents find hope, light and a fulfilled life again after the death of their child, and my husband and I starting an organization to do the same.

If you don’t know our story, it was actually a 26-year ordeal. But to simplify it in one sentence, our daughter, Becca, died at age 29 on October 12, 2011 from heart damage due to one of the chemo drugs she was given at age three (along with having her tiny left leg amputated at that time) as part of her treatment for cancer. (Click here to read the full story.)

The first two years after her death were a blur of suffocating darkness and confusion. (And the second year was worse than the first year, which seems to be pretty normal for those of us who have lost a child from this earth.)

The next couple of years I started doing a bit better, but the fifth year was another weepy one. That Christmas, my oldest son purchased some oysters to be opened live on Facebook, and the pearls inside were mine to keep as my Christmas present. It was so fascinating to watch them being opened and to see the gorgeous different colored pearl in each one. I ended up watching other people’s oysters being opened as well, and felt a drawing to watch more “oyster shucking” when I had the chance.

While waiting for my pearls to arrive in the mail one day, I found myself in tears thinking about how deeply touched I was to be able to have something tangible in my hands to remind me of the hope I have that God keeps His promises to take something so horrific, and somehow (as only He can) turn my shattered life into something of beauty that was still valuable and worth living!

Right then and there, I knew I wanted to find a way to give this same gift of this gorgeous symbol of the HOPE we have in Him into the hands of other pareavors.

I found myself writing something I wanted to give to those who decided to join me in having an oyster opened; letting them know the pearl inside is something we can look at, reminding us that even though it feels like it, we did not die along with our child.

Here is part of what I wrote.

You hold in your hand a priceless treasure. Yes, there is a monetary value placed on the pearl(s) you now possess. However, it is so much more… 

…You have had something way beyond “an irritant” invade your life. You have had to face the death of your precious child. And now you have the opportunity to allow God to do a far greater miracle in you than He does in an oyster, which is to allow Him the time and tools needed to make something beautiful out of something so horrific. 

Yes, it can happen. Not only can it happen, but it will happen, if you allow the One who sees what you cannot see, and knows what you do not know to be at work, deeply hidden in your heart and soul, where no one else has access. He wants to use this tragedy to make you highly valued; a rare and valuable gem, glowing with His love and glory unlike anyone else on earth.

It took almost a year and going down several paths, but my dream of being able to offer this for others is now happening. Once a month, we have an oyster opening live on our GPS Hope Facebook page for anyone who wants a gorgeous pearl as a symbol of who they can become, after a deep tragedy, including the death of their child.

YOU are a precious and rare gem. You may not feel like it right now, but as you continue on your journey, you will realize that yes, you are still valuable. And for those of you who are pareavors, it is because of the deep love you have for your child, that you can have hope as to your rare beauty and value because of that never-ending love.

 

 

For more information on the Pearls of Hope event, click here. Note: You don’t have to be a bereaved parent to get in on it. Anyone can purchase an oyster to be opened just for the fun of it, or as a gift for someone who would appreciate watching their own oyster being opened knowing the beautiful pearl inside is theirs, or because you want to be part of bringing finances to help GPS Hope be able to reach out to more grieving parents.

 

Expressions of Hope is written by author and speaker Laura Diehl to bring hope, light and life to those struggling in darkness after a tragedy, especially bereaved parents. If you would like more information about Laura as an author or a speaker for your next event, click here.

GPS Hope exists to bring hope to parents who have suffered the death of a child, acknowledging their unique grief with support, connection and education for them and those around them.

 

With the death of our child comes such intense darkness. Most of us lose our desire to live. We know it sounds crazy, especially those of us who have other children, spouses we love deeply, careers we enjoy, and so on. But we just feel so lost and helpless when our child leaves this earth. There are no words to adequately describe the depth of our pain and darkness, confusion and turmoil.

We must go through the grieving and mourning process. We cannot go around it. And it always takes  so much longer than we want it to, or think it will. I remember two years in saying, “I just want to stop hurting so bad!”. Since that time, I have had several pareavors (bereaved parents) tell me the same thing.

There are two things that I have found which help with this process. I won’t say they necessarily speed it up, but they seem to ease the pain as we move forward to a place of hope and light again.

1. Don’t isolate yourself. I am not talking about doing things like going to church, or family events. I am talking about spending time with other pareavors, who are further down this road than you are.

It took me almost three years before I spent time with other bereaved moms. At first, it was because I couldn’t find anyone in my area who had lost a child and was reaching out to those of us who had just recently faced the same devastation. Then, after a while, I didn’t want to. I was a mess, and I didn’t want to be in a group of people who were a mess like me! I didn’t want to sit around crying and boohooing with others about our children dying, feeling even worse when I left than when I arrived.

As I was coming up on the three-year anniversary of Becca’s death, I made myself go to a conference I heard about in a nearby state. It was a three-hour drive, and I had to arrive the night before. Sitting in my hotel room by myself, my hotel phone rang. It was Lynn Breeden, the host of the event, asking me if I wanted to join her and her team for dinner. I was scared. I was depressed. Everything in me screamed, “RUUUUUUN!” But I found myself saying yes, and heading downstairs.

I was immediately embraced with warmth and love and acceptance. I felt like a long-lost sister! I am tearing up right now, just thinking about it.

That weekend was a huge turning point in my taking steps toward healing. I discovered it was actually comforting to be around a group of people who were a mess like me. And we didn’t just sit around and cry. We shared our children with each other, we laughed, we heard words of hope and encouragement, and yes, there were tears. But when they came, I didn’t have to explain or make excuses. Everyone there completely understood.

All that to say, don’t be afraid to connect with other pareavors, especially those who can be a guide, walking with you out of your darkness and back into a place of hope and light again. And if there are no groups in your area, there are many ways to connect online with us or others who are doing just that.

2. Find a cause. Don’t let the death of your child be wasted. What was something he or she strongly believed in? Can you do something to fight their cause of death to prevent others from going through what you are going through? Did they have a favorite sport or activity that you can get behind, raising and donating money or starting a scholarship fund in his or her name?

When Becca died, I tried to find books and online groups to help pull me out of the suffocating darkness, but so much of what was out there was despair and hopelessness, telling me that life would never be the same and never be worth living. I had a hard time with that.

While I knew my life would never be the same, I also knew I had the Seed of Hope living inside of me. He was not blindsided by her death like I was. Even though it made no sense to me and the pain was beyond what I even thought was possible, I knew He had to have a plan. I was determined to be like Jacob, wrestling with Him and not letting go until I could see some sort of a blessing from this horror!

And I did! One night I woke up in the middle of the night with a book title and ideas for chapters. I got up and wrote it down, and shortly after, started on my first book. One day at a conference, I ended up in a conversation with a New York publisher who asked me to send what I had his way, and five weeks later was offered a contract for When Tragedy Strikes: Rebuilding Your Life with Hope and Healing After the Death of Your Child. Once I started writing, it was like a dam inside of me burst, as I published five books in only thirteen months.

During this time, people I didn’t even know started reaching out to me to help them with the loss of their child (and a couple of friends who suffered losses shortly after us). I realized I did not want other parents to have the same struggle I had after Becca’s death, only finding darkness and hopelessness. So, Grieving Parents Sharing Hope (GPS Hope) was founded.

We recently had the blessing of spending some time with Speaker of the House, Paul Ryan. He was so very gracious, and thanked us for reaching out in our pain to other grieving parents. We were also able to make him aware of the Parental Bereavement Leave Act in committee right now, which is a needed amendment to the FMLA, allowing twelve weeks of unpaid leave for grieving parents (like it does when a child is born or adopted).

I have been in complete awe that in only two short years, between my books and speaking, I have been able to touch literally thousands of grieving parents with hope, after the death of their child.

I can’t even begin to describe what all of this has done for me in the healing process! And I am convinced from the dozens of parents I have talked to directly, reaching out of your pain to help someone else will do the same for you.

As I shared in the beginning, we must all go through the grieving and mourning process. We cannot go around it. And it always takes so much longer than we want it to, or think it will. I want to encourage you, if you are like I was, crying out “I just want to stop hurting so bad!”, find a way to do these two things, and you will be on your way to making that happen.

I would love for you to meet my precious friend, Pastor Lynn Breeden, whom I mentioned above. She was one of the speakers at our recent online conference (Virtual Summit for Bereaved Parents). To watch the session “Does it Ever Get Better?” submit your name and email below, and we will send you a link to unlock this bonus session from our Virtual Summit.

Expressions of Hope is written by author and speaker Laura Diehl to bring hope, light and life to those struggling in darkness after a tragedy, especially bereaved parents. If you would like more information about Laura as an author or a speaker for your next event, click here.

GPS Hope exists to bring hope to parents who have suffered the death of a child, acknowledging their unique grief with support, connection and education for them and those around them.

 

When I go to the cemetery to visit my daughter’s gravesite, I see many tombstones closer to the front of the cemetery that never have any decorations or any visitors.  Why?  Because they have been there for so long that no one knows who they are to miss them.

The truth is, whether I like it or not, many years down the road, that will also be the case with my daughter’s grave, and mine, and yours, and everyone we love.

If you are like me, I have no idea who my great-great-grandparents were.  I have the names of some of them, but never actually met them.  I knew some of my great-grandparents in my childhood days, and even fewer of their siblings.

It can make me cringe and feel sick to my stomach when I think about the possibility of people forgetting Becca. I don’t care so much if they remember me, but I want them to know who my children are when I am gone. I am guessing you are the same way.

So what do we do? How can we make our children more than just a tombstone in a cemetery? How can we let others know our child was here, and make sure his or her legacy outlives us, even when their time here on earth did not?

The first thing is getting to a point where we want to live in a way that honors the life of our child. Our grief is real. The suffocating darkness takes over, and we have no choice. But at some point (often two  or three years down the road) we see a glimmer of hope that we actually can have a full life beyond the death of our child. When we begin to realize that, we have a choice to make. Am I going to live out my life in a way of hopelessness and despair that honors the death of my child, or am I going to find a way to rise above this darkness and live my life in a way that honors the life of my child?

I hope you can see that choosing to remain in a place of darkness and bitterness, which keeps us from living out our own lives, will not serve the purpose of honoring the life our child was given, no matter how short it may have been.

Once we make the decision emotionally to fight to come out of the dark pit of grief, so that we can find a way to honor the life of our son or daughter, we can begin to see how to do that in a practical way. (And let me add that I am not talking about the sadness and waves of grief that will overtake us at times for the rest of our lives. I am talking about choosing not to remain in that place of suffocating darkness when we start seeing hope and light again.)

Here are just a few thoughts:

• A memorial brick – our local Rotary Gardens has a memory lane where this can be done, as well as Lambeau Field (where the Green Bay Packers play, a team of which Becca and our family are avid fans)
• A bench on a trail – we have an “ice age” trail through our entire state, and people can have a bench put along the path with a plaque honoring the memory of a loved one
• A tree in a park – there are many parks that would love to have a beautiful tree planted and will allow an “In Loving Memory Of…” plaque to be placed at the foot of it

All three of these can be a second place you can go to remember your son or daughter; a place that will help you reflect on memories of their life, as opposed to being in a cemetery (or staring at their ashes in an urn) which tends to cause more painful thoughts of their death.

My husband, Dave, and I had the opportunity to do something quite different.  I was a leader in an international ministry for many years, which has taken me to Africa several times.  This has given me connections and friends in several African countries.  Dave and I wanted to find a way to better the lives of others, as a way to honor Becca and keep her memory alive. We gave money to some friends who lived in the extremely poor country of Burundi. They passed the money on to a family to start a little kiosk type store to support their family.  As far as we know, their business is still going and bringing this family in Burundi, Africa, hope and life!

Someday, all of us who are alive right now will be long gone, and eventually, no one will be left who knew us.  But there are things we can do to make sure our children will be thought of and remembered by many, extending beyond our own lives when we leave this earth to join them.

I refuse to let Becca become nothing more than an undecorated tombstone when I leave this earth. I am going to make sure her life and legacy live on for others.

How about you?

If you would like more ideas on ways to honor your child, just fill in your first name and email address, and we will send it to you. (Be assured, your email address stays with us and is not given out.)

Expressions of Hope is written by author and speaker Laura Diehl to bring hope, light and life to those struggling in darkness after a tragedy, especially bereaved parents. If you would like more information about Laura as an author or a speaker for your next event, click here.

GPS Hope exists to bring hope to parents who have suffered the death of a child, acknowledging their unique grief with support, connection and education for them and those around them.

 

Did you know that 370 sets of parents (740 people) lose a child age 40 and under daily in the US (based on 2011 statistics) and that does not count pregnancy loss? Sixty-five babies die every day in their mother’s womb.

You would think with numbers that high, our culture would know what to do, where to turn for help and support, and how to grieve and allow such deep grief. Sadly, that is not the case.

Those who have lost a child from this earth will say they wouldn’t even want their enemies to go through such horrific pain and suffocating darkness. Most bereaved parents I know have these five beliefs in common:

1. No grieving parent should feel alone, isolated and abandoned.
2. All grieving parents should be able to quickly and easily connect with other bereaved parents for encouragement.
3. Any parent who has had a child die, and his or her faith in God has been shaken, should have a safe place to share their hurts, doubts and anger without judgment or being shunned by other Christians.
4. Those around bereaved parents need to know how to give true comfort and support (which includes physical and emotional), and treat it as the long process it is, instead of an event.
5.  Even before a parent loses a child, they should already be aware of who they can contact for support in their pain and confusion if their own child leaves this earth.

Almost every bereaved parent I have ever met believes these things. But unfortunately, that is not reality.

So, that leads to the question, “Is there anything we can do to help this become reality in today’s world?”

I believe strongly the answer is a firm “YES”!

How?

By prayer, by perseverance, and by people.

Prayer can be a tough one. After all, we pray for our children, especially for God’s protection. Since He didn’t protect our child from death, why should we bother praying?

Because the purpose of prayer isn’t to make God into a magic genie and get whatever we want from Him. Prayer is communicating with Him, both talking and listening. Prayer is laying things before Him, and allowing Him to be God, trusting that He can see what we cannot see, and that He knows what we do not know. Prayer opens doors. It opens the doors of our hearts. No matter what happens, we need to communicate to our Father, and continue to have conversations with Him.

Perseverance means to keep moving forward, no matter how difficult the obstacles or how long it takes.

I don’t know about you, but I am in this for the long haul. Not just to exist until I leave this earth and join my daughter, Becca, but to walk with other grieving parents, giving them hope in their place of darkness. I am determined to find ways around the obstacles that show up. I don’t plan on quitting when I get discouraged. For these five things to become a reality, it requires determination and commitment, and I have both. I hope you do, too.

That leaves the last one – people.  The adage that we are stronger together than by ourselves is very true in this situation. If you haven’t yet, I encourage you to join forces with those who not only share these beliefs, but are acting on making them a reality. When we do, each of us becomes part of something that is bigger than any one of us can ever be by ourselves.

I love to pray, and I have perseverance. But I am only one person. For those five beliefs to become a reality, I need to join other people who desire to see these beliefs become a reality and are ready to help complete the task with their own prayers and perseverance.

I personally believe this is not just a hope or a dream; it is a movement. A movement that one day, our culture will acknowledge that grief is not something we “get over” like a bad cold.

Do you believe? Can you pray? Are you willing to persevere? Then let’s work at this together, to make these five beliefs a reality.

 

 

If you would like to connect with Laura Diehl and Grieving Parents Sharing Hope (GPS Hope) submit your first name and email address below. We will send you a printable copy of the Five Beliefs of Bereaved Parents. You will also have access to our GPS Hope library with lots of useful information and helpful tools for your grief journey.

Expressions of Hope is written by author and speaker Laura Diehl to bring hope, light and life to those struggling in darkness after a tragedy, especially bereaved parents. If you would like more information about Laura as an author or a speaker for your next event, click here.

 

GPS Hope exists to bring hope to parents who have suffered the death of a child, acknowledging their unique grief with support, connection and education for them and those around them.

When we are in a place of emotional stress, it is usually all we can do to handle life day-to-day (or even minute-by-minute). It is very common during that time to stop taking care of our bodies.

But I have discovered, unfortunately, that is one of the worst things we can do. Our emotions are so tied up in our physical health. Think about it. When are getting enough sleep, eating healthy food that is fuel for our bodies and moving around (even if it is just getting out for a walk), we feel so much better. I know I sure do – like I can take on the world!

I know at first, when the tragedy takes us to our knees, we don’t have much of a choice. Our body just kind of seems to take over as a response to the intense grief. Some of us find ourselves eating unhealthy “comfort foods” constantly. Others discover they don’t eat anything at all for a couple of days. Some of us can’t seem to stay awake and all we can do is sleep. Others want desperately to sleep, but even with sleep aids it often still seems to allude them.

Me? I slept a lot and grabbed the comfort foods, which put an extra 30 pounds on my body. Over five years later, I am still struggling to get my health back under control.

But we all get to a point where the fog starts to lift, and we are left with the reality of the depth of our pain and horrific loss. Most of us continue in the pattern we found ourselves in, convincing ourselves we are helpless to stop.

I want to encourage you that is not true. What is usually happening, is that we see ourselves as a victim of the circumstance and let that become our identity. (My identity became, “I am the mother of a child who died.”) As long as that is our identity, we continue to believe things won’t change, and we will always struggle, both emotionally and physically.

At some point, we will come to a place where we start making the choice. “Do I want to stay a victim and let that become my identity? Or do I want to figure out how to climb out of this pit of darkness and back into a place of hope and light and life?”

If you are ready to start climbing out of the pit and get back to living again, here are three suggestions to help you start going in the right direction.

1. Take a daily stroll. I know we don’t feel like it, but it does so much to release stress and keep our bodies in better working order.
2. At least once a day, chose something healthy to eat instead of reaching for that indulgent item that you will pay the price for later. I know that is easy for me to say and much harder to do. Something that might help is a change in perspective. I can either “treat” myself to those brownies or that ice cream, or I can “treat” myself to something that will be fuel for my body. Usually once I take the first bite of the healthy item, it tastes good because my body is craving the nutrients and I am glad I chose what I did… usually….
3. Build in times of rest, including going to bed early or sleeping in late. Whenever we face a crisis, our adrenal glands (the built-in “fight or flight” mechanism we each have) are working overtime in a big way. You can become critically ill if they burn themselves out. Rest is one of the only things that counters the work they are doing on your behalf.

We don’t get to choose how our body reacts to a shocking tragedy. But what we can and need to do is look to God for how to not abuse our bodies during this time, and ask Him what we can do to help our bodies come back into alignment with being healthy. He knows what we need, each day, each moment. And then be sure to follow through with the nudges of the Holy Spirit.

The last thing I want to say is to not be hard on yourself for letting your body somewhat fall apart. You have been in survival mode. Just take one day at a time, and keep stepping in the right direction. It is a process to become healthy again after a tragedy strikes our lives. And probably one that will take longer than you want it to.

Remember that choice of either staying a victim or climbing out of the pit of darkness and despair? I urge you to start making your way out with baby steps by taking back your health. And keep going, because it is worth the climb!

 

 

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Expressions of Hope is written by author and speaker Laura Diehl to bring hope, light and life to those struggling in darkness after a tragedy, especially bereaved parents. If you would like more information about Laura as an author or a speaker for your next event, click here.